Mission and public details
The Mission of The Noonan Syndrome Foundation is to Support, Educate and Advocate for Those Diagnosed With Noonans Syndrome By Supporting Research for The Development of Effective Treatments, and Ultimately, A Cure for The Syndrome. Noonans Syndrome is Identified By A Genetic Mutation In The RAS/MAPK Pathway and is Expressed In Many Ways, Over Numerous Systems In Patients. The Noonan Syndrome Foundation Supports Patients and Families By Providing Information Online and In Regular Publications, Holding Regional Events, Conferences and Support Groups. Connecting Patients and Families to Caregivers Familiar With Noonan Syndrome is of The Utmost Importance Ot The Foundation As Well. Another Goa…
- Organization
- NOONAN SYNDROME FOUNDATION
- EIN
- 46-1871620
- Address
- 605 US HIGHWAY 40 STE 277, BLUE SPRINGS, MO, 64014-3232
- County
- Jackson
- Tax category
- Professional Societies & Associations
- NTEE classification
- E03
- Organization website
- Visit website
