Mission and public details
DUP15Q ALLIANCE EMPOWERS INDIVIDUALS LIVING WITH DUP15Q SYNDROME and OTHER RELATED RARE DISEASES to REACH THEIR FULL POTENTIAL BY ADVANCING BREAKTHROUGH RESEARCH and LIFE-CHANGING THERAPEUTIC TREATMENTS, SUPPORTING FAMILIES AFFECTED BY DUP15Q, and PROMOTING ADVOCACY. AS THE ONLY PATIENT ADVOCACY GRUP FOCUSED ON DUPLICATION 15Q SYNDROME, OUR ORGANIZATION is DEVOTED to ADVANCING RESEARCH INTO THE SYNDROME, SUPPORTING and PROMOTING THE WORK of SCIENTISTS, CLINICIANS, and DRUG DEVELOPMENT COMPANIES IN THE SEARCH for TREATMENTS THAT WILL ALLEVIATE THE SERIOUS and MULTIPLE SYMPTOMS of THE DISORDER. WE ALSO WORK to EDUCATE FAMILIES ABOUT THE SYNDROME, SUPPORTING THEM WITH INFORMATION, and CONNECTI…
- Organization
- DUP 15Q ALLIANCE
- EIN
- 20-0751232
- Address
- 250 N TRADE ST, MATTHEWS, NC, 28105-9449
- County
- Mecklenburg
- Tax category
- Specifically Named Diseases
- NTEE classification
- G80
- Organization website
- Visit website
